Background

Stroke can affect a wide range of a person’s abilities, including movement, sensation, thinking, memory, and communication. Rehabilitation in stroke units helps patients to regain these abilities, however many will continue to have difficulties with day-to-day activities after they leave hospital. Stroke survivors and their families need information about how much they are likely to recover and how long this might take. This can help them engage with rehabilitation, make decisions, plan for the future, and adjust to any continuing difficulties.

Currently many stroke survivors and families do not receive enough information about recovery. Stroke unit staff can also find this information difficult to provide, particularly when it involves breaking bad news. Staff need to provide clear, consistent, and realistic information to their patients about recovery with compassion, whilst being careful that this information doesn’t discourage them from taking part in rehabilitation. However, they receive little training in how to do this and can lack confidence.

Aims & Objectives

This project aims to develop an intervention to improve the quality, consistency, and delivery of information about recovery provided to patients and their families on stroke units.

Methods

We will use a research method called co-production. We will help stroke survivors, their family members, and stroke unit staff to work together over six, monthly meetings (lasting <3 hours) to decide how best to help staff provide information about recovery. Although ideas for the intervention will come from this group, it could include staff training to improve their communication skills, and written or audio visual information to provide to patients and their families to support conversations.

Partners & Collaborators

Investigators

Todd O, Burton L, Bates S, Crocker T, Forster A.

Collaborators
Bradford Teaching Hospitals NHS Foundation Trust
University of Leeds
Leeds Teaching Hospitals NHS Trust

Timescales

01/08/2023 – 31/07/2024

Funding agency

Leeds Hospitals Charity (ref: A2002293)

Further information

For further information contact Louisa Burton